National Invisible Chronic Illness Awareness Week, September 8-14, 2008

Chronically Ill Enthusiastically Anticipate Virtual Internet Conference Sept 8-12


Press Release posted on – some excerpts are below for your reading pleasure as normal…

Traveling expenses, hard beds, peers wearing too much perfume, long treks to conference rooms, and exhausting days make up the typical conference–all which make it nearly impossible for the chronically ill to attend events where they can find encouragement and education. National Invisible Chronic Illness Awareness Week’s “virtual” conference online is more than just practical. It’s necessary


One of the ways to meet the needs of the chronically ill is to provide the type of forum where they can learn, connect with others and interact with professionals. For the chronically ill, who typically have difficulty sleeping, extreme fatigue, trouble walking and sitting, and even chemical sensitivities, a virtual conference, where people can stay comfortable, attend free and avoid traveling is the perfect fit. 

Four seminars per day, Monday through Friday, September 8-12, are available at and all will be recorded and archived. 

Hundreds of people are also blogging for awareness about invisible illness issues on September 8, 2008. For more information see 


Media Relations Contact

Lisa Copen Email Contact 
National Invisible Chronic Illness Awareness Week


At last this seems to be a step in the right direction for people who suffer badly from diseases like Endometriosis, it will be intresting to see if any post awareness week articles and press releases give us some info on how successful it was.

Endometriosis Documentary Advert

We are looking for cross section of women to appear in a documentary that aims to both raise awareness and combat the unfamiliarity of the disease by providing an intimate look at how Endometriosis affects not only the sufferers but their partners, family and friends. Whilst both being
informative and sensitive to the subject matter, the style of the film will be casual and informal, so as to encompass an “every day” or “real life” feel. We need women to talk candidly about their quality of life and the toll it takes on those around them, especially family and friends. We also want to explore their “management” the disease, any surgical procedures they have undergone, or at this point are considering and also, their hopes for
the future.

In particular, the producers are looking for case studies to allow for a “warts and all” insight into their lives. Although, this aspect of the production will be intrusive and at times disrupting, it will allow for a unique opportunity to document the iscomfort and inconvenience of the illness. A small camera would be left with the subject to record the ups and
downs, including “diary moments” during the difficult times, so as to reduce the level of disturbance posed by a cameraman. We also want to include a young woman, approx.16-25 yrs, in the group.
If you feel that you would like to share your experiences with others, please get in contact with us as we want to hear your story. Unfortunately, we cannot pay a fee to all those who appear in this documentary, however, we
will reimburse expenses within reason. We need you to provide us with some background information, so as to collate the data prior to production.

Please inform us with: a brief history of your condition, contact details, age, marital status, single, family, job etc. Additionally, if you have any
information connected to Endometriosis that you feel would be of interest or know of any unusual or inspiring circumstances, we would very much like to talk to you. Our contact details are as follows. e-mail:
Postal address: 32 Falkland Road. London. N8 0NX.
Once you have sent your information, a member of our production team will contact you as soon as possible.

New Breast Cancer Treatment Drugs!

Not quite endo related directly, but in the future it may be, many drugs that are used to help women with endo are primarily cancer treatment agents or are used in combination with other drugs to treat cancer. There has been a dramitic improvement in some breast cancer treating drugs – they will become available widespread in the uk in about 3 years.. Click to read a short snippet from the BBC website along with a URL for the article.

A new generation of breast cancer drugs have proved to be more effective than tamoxifen for some post-menopausal women, suggests research.
The drugs, known as aromatase inhibitors, shrank tumours better and helped more women survive their illness.

However, is not clear if they will replace tamoxifen as the first-choice treatment for some types of breast cancer, and are unlikely to be available to UK women for some time.

(Cut from BBC) for rest go to here

BBC Site

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