Endometriosis : Managing Stress

We found this online the other day , it’s well written advice and it deserves to be spread – as a result here it is, credit is linked below.

 

What can I do to prevent endometriosis? Although endometriosis is rarely life-threatening, it affects life on two very critical levels—well-being and fertility. Women are often surprised by the differences they can make in ending the misery of endometriosis.

Taking charge of the disease involves change. There is no getting away from it. it requires a real willingness to invest in yourself and alter some daily routines and ways of thinking about the disease, as follows.

• Build a support system. This begins with finding a doctor who understands endometriosis and how it has affected you in particular. There is no use in convincing skeptical practitioners that you are suffering from a real condition if they persist in believing that your symptoms are psychosomatic.

Discuss your condition with family members and friends in a calm and tactual manner. Explain what you have learned about the disease and why you are feeling the way you do. Severe menstrual camping attributed to prostaglandin levels, painful intercourse, and mood swings due to hormone fluctuations are real factors ha die disease. Now that your loved ones know it’s not “in your head,” ask for their help in getting you through any especially difficult time. If you feel you need pyschological counseling either alone or in ramify therapy to help sort out your feelings shout the impact of the condition on you and on others, seek help now.

The “career woman’s disease” touches the lives of millions of women who must deal with their condition and continue to work efficiently. This can be a problem. Many employers are not interested in hearing that employees suffer from chronic disorders such as endometriosis. As with sufferers of PMS, women with endometriosis may be assumed to be overly self-indulgent during menstruation. It has been estimated that 140 million work hours are lost each year to the symptoms of endometriosis, a fact that the business world cannot ignore.

Yet, they do. Now it is up to you. Your wisest strategy is to be consistently reasonable at work and prudent about whom you inform of your condition. Although your impulse may be to educate your employers and coworkers, many of whom may have the disease or know others who might, not everyone may be sympathetic to you. They are two schools of thought about discussing this disease and its effect on women, and doing so on the job. Some avoid public disclosure, feeling it is best to be discreet. They are concerned that knowledge of their condition may he used against them, that is, used as a reason to bold them hack from greater responsibility and promotions.

Other women fed that having endometriosis is not a stigmatizing factor and that a calm, honest, and educational approach will not hinder their career advancement. These women are bolder about their approach to the disease. They may disseminate information about endometriosis, or post notices of discussion groups to alert women to what they can do for themselves and for others, too. Knowing they do not have to keep silent about their condition and finding even one other woman at work who shares their problem gives them a psychological boost and an important sense of supportiveness. The action you do or do not take at work will depend entirely on the kind of job you have and the general tone of your workplace. You will know best what to do in this case.

 

Post contents from:  http://fdadrug.net/2009/05/endometriosis-managing-stress

Posted under Alternative Therapies, Endometriosis Information

This post was written by admin on May 15, 2009

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Drinking Red Wine May slow Endometriosis

A paper that was presented at the American Collage of Obstetricians and Gynaecologist’s Annual Clinical Meeting this year has said that Drinking Red Wine may be good for health and may help to prevent Endometriosis.

The research in the paper has shown that mice with endometriosis were given doses of compunds found in soy and red wine the activity and growth rate of the tissue was decresed and the size also was reduced.

In conclusion Sharai C. Amaya of Greenville Hospital in South Carolina along with her co-authors say “Further studies are required in humans to investigate the role of dietary compunds such as soy (geninstein) or red wine (resveratol) on both gynecologic health and disease”.

 

Story gleaned from Endometriosis News & Demo-research.

Posted under Endometriosis News & Updates

This post was written by admin on May 11, 2009

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Call for updated Endometriosis Doctors

A while ago we posted a list of doctors as part of a post which is readable on:

http://www.endosupp.com/2007/08/the-encounter/

We have recently updated a couple of details, however are planning on posting a more comprehensive list on the site.  To do this we need your help!

If you are aware of a doctor or surgeon who specialises in Endometriosis, please drop us a comment or email to webmaster@endosupp.com.

Posted under Recommended Doctors

This post was written by admin on February 19, 2009

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Alternative treatments

Starting a new series of articles – we are going to look at some alternative therapies that may help endometriosis sufferers.

Whilst these are largely conjecture – we hope to help inform people and give reasons for these therapies working and back it up with any study data we can locate.  

This is to counter the crack-pot “cures” that do not exist and are proliferating the Endometriosis communities now, especially “cures” which are deamed authoritive because one person got relief, with no science behind them or cures.  Often these can be more dangerous if the advice is followed naively.

As they say… stay tuned for this series which will be semi-regular, in that we will update it when we get the information ourselves!

Posted under Alternative Therapies

This post was written by admin on February 18, 2009

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Endometriosis – a visual view.

We’ve come across a site - http://www.nlm.nih.gov/medlineplus/tutorials/endometriosis/htm/index.htm

 

this has interactive and static descriptions of Endometriosis.  For those who want a more colorful guide to endometriosis it is definately worth a look.

Posted under Endometriosis Information

This post was written by admin on February 9, 2009

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New drug is approved for endometriosis pain..

This relates to our U.S. readers only at present as far as we are aware – if anyone has other info let us know.

First new treatment to be approved for Endometriosis in 15 years.  

Depo subQ provera 104 (yes it’s a mouthful – a form of Depo Provera) has been approved for treatment – the drug is made by Pfeizer and contains 104 mg medroxyprogesterone acetate and can treat endometriosis pain as effectively as leuprolide acetate, but is associated with significantly less bone loss over the course of treatment.

It also has fewer side effects also associated with prior treatments.  

 

Hopefully this will benefit many sufferers as one of the major problems with previous treatments, as our readers will know, is the bone density loss, which if not monitored has led to problems for people in later life, along with some very severe side-effects to sensitive people.  

Anyone who has treatment from this new drug please get in touch with us and let us know by emailing info@endosupp.com .

Posted under Endometriosis News & Updates, Treatment of Endometriosis

This post was written by admin on September 27, 2008

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National Invisible Chronic Illness Awareness Week, September 8-14, 2008

Chronically Ill Enthusiastically Anticipate Virtual Internet Conference Sept 8-12

 

Press Release posted on http://www.sbwire.com/news/view/21215 - some excerpts are below for your reading pleasure as normal…

Traveling expenses, hard beds, peers wearing too much perfume, long treks to conference rooms, and exhausting days make up the typical conference–all which make it nearly impossible for the chronically ill to attend events where they can find encouragement and education. National Invisible Chronic Illness Awareness Week’s “virtual” conference online is more than just practical. It’s necessary

 

One of the ways to meet the needs of the chronically ill is to provide the type of forum where they can learn, connect with others and interact with professionals. For the chronically ill, who typically have difficulty sleeping, extreme fatigue, trouble walking and sitting, and even chemical sensitivities, a virtual conference, where people can stay comfortable, attend free and avoid traveling is the perfect fit. 

Four seminars per day, Monday through Friday, September 8-12, are available at www.invisibleillness.com and all will be recorded and archived. 

Hundreds of people are also blogging for awareness about invisible illness issues on September 8, 2008. For more information see http://www.invisibleillnessblog.com 

 

Media Relations Contact

Lisa Copen Email Contact 
Director
National Invisible Chronic Illness Awareness Week
858-486-4685
http://www.invisibleillness.com

 

At last this seems to be a step in the right direction for people who suffer badly from diseases like Endometriosis, it will be intresting to see if any post awareness week articles and press releases give us some info on how successful it was.

Posted under Endometriosis News & Updates, Other News

This post was written by admin on September 7, 2008

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Neurocrine reports positive results in latest Endometriosis Drug Trials

Neurocrine studied 252 patients, with a confirmed diagnosis of endometriosis. The company split the group into 3 sets for treatment over 6 months.

  • elagolix 150mg once daily  (new drug)
  • elagolix 75mg twice daily  (new drug)
  • depo provera 104 (DMPA)  (common treatment)
Elagolix showed an improvement of endometriosis symptoms following treatment.
An Improvement in endometriosis symptoms was documented against different pain scales commonly used to rate symptons of sufferers.
In addition the impact on bone density loss was statistically less than on other treatments.
Also on the news the companies shares of course edged higher.

Posted under Endometriosis News & Updates, Treatment of Endometriosis

This post was written by admin on September 6, 2008

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Another wrong News Article….

The story in this news article is a moving one, basically about a woman who has been mis-diagnosed with endometriosis many times when her condition is much rarer – so I do feel for her and we can all relate!.

 

However, the reason why this is apearing here, is that the article goes to explain that endometriosis is:

The common wrong conclusion was that Tara had endometriosis, which occurs when endometrial tissue — tissue normally found only in the lining of the uterus — grows elsewhere in the reproductive system and even in the intestines.

Which we all know is WRONG – on this site we have numerous entries about endo elsewhere, even with a couple about endo in the LUNG which is a little bit removed from the area’s above.  This sort of mis-information doesn’t really help much – though at least they have it right for the majority of known sufferer’s I suppose!

 

Anyway we are going to make a new section for “wrong news on endometriosis” – which might be fun!

 

p.s. original article here http://www.newstimes.com/ci_10386222

Posted under Wrong News on Endometriosis

This post was written by admin on September 6, 2008

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Fertility Society Australia 2008 Conference

We hope to start finding out the information about more of these conferences as the site grows and our userbase continues to expand.

For our users from Australia here’s info about the fertility society of australia’s conference dates this year (2008).  Since our personal IVF was successful – and the main reason for needing this was due to the endometriosis causing infertility problems I think these advances are very very important.

Posted on http://info4endo.com/2008/08/29/fertility-society-australia-2008-conference/ .

 

 

When & Where
19 to 22 October 2008
Hilton Hotel, Brisbane
Queensland, Australia

Theme: Working Together For Reproductive Health

The conference theme, “Working Together For Reproductive Health” guided the development of the sessions, though we retained some of the discipline based sessions. This theme was chosen to highlight potential benefits for our patients if we all recognize our respective skill sets and organise ourselves around a common theme. The overall aim of the program is to provide sessions that stimulate further discussions with your colleagues in the many IVF Units in Australia and New Zealand.

Keynote Speakers
John Collins
Bart Fauser
Jonathan Van Blerkom
Andrew Van Steirteghem

Registration is now open. For more information, please visit the FSA Conference website.

 

Posted under Endometriosis News & Updates

This post was written by admin on September 4, 2008

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